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Monday, June 14, 2010

Chantal Sicile-Kira: Autism and Education in France

Chantal Sicile-Kira: Autism and Education in France

Chantal Sicile-Kira

Chantal Sicile-Kira

Posted: June 14, 2010 02:03 PM

Autism and Education in France

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Recently I was invited to Paris to present at a prestigious international colloquium on autism and education, which was organized by the INS HEA, the French Ministry of Education's training institute for special education teachers. Seventeen years earlier, I had left France because in those days, children with autism did not have the right to an education, and my son, Jeremy, was severely impacted by autism.
It was an emotional moment for me, standing there, addressing 500 attendees in a lecture hall of the Universite Paris Descatres in Bolulogne - Billancourt, explaining my son's educational experience in the United States, where all children have the right to a free and appropriate education under IDEA.
In 1993, my family left France, where we had been living since 1981. Both Jeremy and his sister, Rebecca (who is neurotypical), were born in Paris at the time when children with autism were considered mentally ill, not developmentally disabled. They had no right to an education. Instead, they were enrolled in day programs on hospital sites, where they were treated with psychoanalysis. Parents had no right to visit the day program, nor did they receive any communication about what went on during the hours their child spent there.
When Jeremy showed autistic tendencies, I was told by the powers that be to take him to see a psychoanalyst. The psychoanalyst concluded that Jeremy was autistic because he suffered separation issues from breast-feeding. This the analyst gleaned from watching him spin round objects (which reminded him of his mother's breasts) and chase after one that he had "lost" when it fell and rolled under a piece of furniture.
The French genetic specialist who handed me my son's diagnosis, also handed me some advice. She told me to look for and find a good institution for Jeremy. I have -- it's called public school. On June 18th, both Jeremy and Rebecca will be graduating from high school. Jeremy will have taken seven years to do so, in comparison to Rebecca's four. I am equally proud of both of them.
I am not sharing this information to knock the French; I have heard similar stories in the UK and in the US: Parents seeking help were often blamed for their child's autism and were given no hope and no answers. The big difference however, is that back then there were no French laws allowing